Short Film “Feeling Through” Feels Racist, Ablist, and Tired

As a Deafblind woman, I was excited to hear the buzz that was afloat about an Oscar nominated film short called “Feeling Through.” It stars Robert Tarango, an actual Deafblind man playing a Deafblind character. There has almost never been a movie with a Deafblind character, and had there EVER been a movie starring a Deafblind actor? I was hopeful that finally, my small unique community of Deafblind people would finally get a positive portrayal on film.

It took me several weeks to see the movie after its release. There was no audio described or transcript/screenplay made public for Deafblind people to be able to access the movie until several in the community complained. Then, a transcript finally came out that had several typos and seemed rushed. Finally, I saw the movie via a combination of watching the audio described and captioned version with some assistance until I could finally read the transcript. When I saw it, I was horrified and crestfallen. It was a terrible movie, not only in how it portrays the Deafblind man, but in its portrayal of the protagonist, Tareek, a houseless black teen played by Steven Prescod. (Note: Although the transcript identified Prescod’s race as black, it did not identify the race of Taranto. Sighted assistants have reported to me that he appears white.)  Although I have nothing bad to say about these two actors and was happy that a Deafblind man was playing a Deafblind part, this was the only good thing I could rejoice about this movie.

Taranto’s character, Artie, was like very few Deafblind people I had ever met and didn’t seem to represent us at all. Deafblind people are very diverse, and we have a million ways of doing things, so I did not expect that Artie would do everything exactly like me. But since there are basically no representations in media of Deafblind people, I was hoping that Artie would be a positive one. I have since learned that Artie was based on a real character named Artemio who immigrated to the U.S. and did not know braille. Although I do understand that there are Deafblind people who unfortunately slip through the cracks and do not have the same access to resources an education as most of us do, I felt like this fictionalized depiction of Artie was a missed opportunity to tell THAT compelling story of a resourceful person through his lens than the story that was told. To me, fictional Artie seemed to be a hapless and selfish character who bumbled through his tasks by nabbing and taking advantage of whatever passerby might come along, and then turning the entire responsibility of himself over to that random stranger. Although I can’t speak for all Deafblind people ever, that is really not the way the majority of us go through life.

I work in assistive technology, and what I noticed most about the film was that although Tareek was equipped with a smart phone, Artie had been completely and unrealistically stripped of any technology that disabled people depend on to access their world. In the story, the houseless Tareek is looking for a place to crash by texting his friends, when he runs into Artie, who holds out a sign asking for help. Many deafblind people do use communication signs when interacting with a public who largely doesn’t know how to communicate with us. But most of the time, we might only ask for a simple tap to indicate when a light has changed, or we may ask for a small amount of guidance that would take someone only a few minutes out of their day. Artie asks for help finding a bus stop which is fine, but then proceeds to: assume that Tareek will sit with him, tell him the bus schedule, go and get him water and snacks, handle the payment for the snacks by handing him his entire wallet, get back to the bus stop, wait with him for over an hour, wake him up when he falls asleep, tell him when the bus comes, speak to the driver for him, and generally take total responsibility for him.  Deafblind people have many methods of doing things, but I guarantee, the vast majority of us would not do it the way that Artie does it. 

Deafblind people can and do use smart phones, usually by connecting them to a Bluetooth digital braille display. Most of the same apps that are available to sighted people are available to us. We can get directions with navigation apps, read bus schedules, and call an Uber with them. But they are also invaluable to create connections between us and the sighted, hearing world. We can use our smart phones as communication devices, they can tell us what dollar bills we are holding, they can help us to flag down a particular bus, and show the bus driver where we want to go and even watch for our stop with them. But Artie has been stripped of basically all the tools that Deafblind people use for independence and was only left with a pen and paper and printing on Tareek’s palm. These are legitimate low-tech solutions that people use in a pinch, but not routinely in the middle of the night with a total stranger to get home. There are national programs that provide this equipment to most Deafblind folks, but sometimes Deafblind people don’t have access to tools and the training to use them. However, when representing one of the only deafblind characters in all of popular culture, when most of the public doesn’t understand how we do anything, this portrayal of a very unrealistic deafblind person does more harm than good.

(This photo shows a man in jogging clothes with a guide dog. He has his hands on a braille display which is held by a strap around his neck. Digital braille devices connect to smart phones and are key tool to connect blind and Deafblind people to the world.)

But the reason it was necessary to show Artie rather hapless and without tools is actually the bigger problem in this film. Artie was not so much a character as he was used as a plot device for Tareek’s redemption. The story is through the eyes of the down-on-his-luck Tareek, who takes advantage of Artie by robbing him on the sly when Artie hands over his wallet to him. I found this portrayal of a black criminal minded youth to be very troublesome and concerning. Aren’t we ever going to move past this trope of black thug youth on the streets? Can’t we do better? And the plot of the movie is the same old tired disability porn trope where a disabled person is used as a prop to inspire a nondisabled person. In Feeling Through, this is especially cringy as a houseless black teenager is pitted against a Deafblind man in some sort of Oppression Olympics. It is not the job of disabled people to inspire better behavior in others. It is really not the job of black youth to play criminals needing redemption through encountering another underrepresented person who is supposed to be “worse off” than themselves.

Activist and Attorney, Haben Girma, who is black and Deafblind, had similar feelings about this film. “Racism permeates the entire project, from failing to racially identify white characters in the transcript to portraying Black boys as criminals.” She told me that she was approached in 2018 to help fundraise for it, but that based on the descriptions and clips she was given, she was very concerned about the message that it gave to underrepresented youth. “America does not need another film portraying a black person taking advantage of a disabled man.” Actress Ashlea Hayes, who is also deafblind and black, walked away from the film with mixed feelings. She saw Tareek as mostly “gentle, kind, and understanding” and appreciated that he wasn’t a “white savior” character. But she said “The DeafBlind character did not portray DeafBlind people appropriately. The average person watch this film would assume that DeafBlind people are not independent, and capable.”

When I started watching the film, I was hopeful that maybe we would see some real interaction between Artie and Tareek. Maybe we could get to know something about their lives and how they accomplished their goals, maybe they could even help each other out (Could Artie have offered Tareek some money or maybe even a place to stay?) But instead, I was appalled to see a Deafblind man who didn’t know where the bus station was, fell asleep in the wee hours of night at a bus stop, and gets ripped off unawares by a black kid. Then, I believe I was supposed to feel warm and fuzzy when Tareek somewhat redeems himself in the end, but I didn’t. I just felt like racism and ablism, rinse, repeat. Same thing, different day. This matters because when the general public does not tend to know anything about Deafblind people, the very few media representations we get are very important. A negative or misleading depiction can cause us more discrimination and lost opportunities in employment, education, and community. If I go in for a job interview and the employer thinks of poor Artie tripping over construction cones and getting robbed without even knowing it, I have and uphilll battle to convince him that I am a responsible, aware and competent person who will not need constant caregiving just to walk down to the coffee stand.

I was hoping this film–which until pressured, didn’t bother to make itself accessible to deafblind folks–would wither and die. But instead, it has been nominated for an Oscar. How original. A nondisabled person’s exploitation of disabled people as prop for the appropriate amount of heartstring tugs is not a new thing. The 2019 documentary, titled “Code of the Freaks,” calls out tired disability tropes seen in movies by playing a montage of nondisabled actors winning an Academy Award for playing disabled people in movies which largely are inspirational porn-themed tearjerkers. Feeling Through does right by hiring a disabled actor for a disabled part, but that isn’t enough. We need disabled screenwriters, directors and producers who will make realistic films about our lives from our point of view and our reality. Crip Camp, a nominee in the documentary category, is a step in the right direction. Somehow, Feeling Through managed to sneak past the “piercing gaze” of those who are trying to make the Oscars move in a more authentic and diverse direction. My hope is that the Academy will be savvy enough to see it for what it is and not vote for it to win this category. There are much more fascinating stories out there about underrepresented communities than these same tired white, nondisabled versions of what they think our lives should be.   

Deafblindness in the New Yorker

I have been interviewed by several media outlets about Deafblindness and the Coronavirus in the last few weeks, and I am quoted a few times in this one from the New Yorker.

Who is “Worthy”? DeafBlind People Feel that Doctors Won’t Save them from the Coronavirus

I find myself wondering what the purpose and interest is in these articles. But I think it is like everything in our lives. People don’t realize Deafblind people exist. I can’t tell you how many times I tell people that I am Deafblind and that is why I need X accommodation and they are like… struck dead in their tracks in disbelief that people really exist in the world and have lives and jobs and kids, etc. while being Deafblind. So, hopefully these articles possibly make people stop and think about considering us in the decisions they make when they develop policies for this situation.

Also the most frightening aspect of this for all disabled people is this notion of eugenics oriented triage and the risk that we will not get access to the same health care as others. For Deafblind people, the problem of communicating in a health care setting where people may be unwilling to allow for interpreters, communication devices, touch-based communication and other methods leads to the fear that we will be cast aside and given no human consideration whatsoever. So hopefully these articles will allow for some creativity and imagination when it comes to our community and the realization (yes, I have to say this) that we are actually worthy of health care.

October Odds and Ends

October was an extremely busy month. I’m just finally catching my breath. We started with a teen retreat, then my twins met their biological father for the first time (he found us via DNA testing in May and we had corresponded since then. They have known many of their donor siblings for years, but meeting their “third dad” has been a bit of–a positive, but still–a whirlwind.) We had NFB convention presentations, other miscellaneous presentations, my family visits, Halloween events, I got a new Braille Display to get used to, My partner, Niklas Petersson, went to Qatar at the last minute for a week, I was sick with a respiratory infection for about three weeks, and now I want the most boring November ever.

But backtracking, I had a couple of published things I wanted to post here.

First, I did an interview with the disability activist and blogger Mariah Hudson Nichols. I am really enjoying her blog. Check out my interview and stick around for the rest of her blog.

Disabled Moms Interview Project: Lisa Ferris, Deafblind Mom

Second, I had a column published in the Rooted in Rights blog. I have worked with them before, but I learned a lesson here. I wrote this up several months ago and sent Emily Ladau a draft to see if she was interested in it at all. She said yes, and that she would like to print it in October for Disability Employment Month. …And then, I promptly forgot about it. I had meant to go through an editing process with her and shape it up a little, but lo-and-behold, one day it was published as is. I learned in my freelance career that maybe it is best to NOT turn in an article before being pretty sure that it is edited to my satisfaction. That is my mistake, and the typos are mine.

“Essential Functions” on Job Postings Creates Barriers for Employees and Employers Alike

Third, Nik had a story in Al Jazeera about his trip to Qatar where he demo-ed educational equipment at the Qitcom convention. The story is in Arabic, but I will try to put a link of it through google translate for you (which makes it sound odd, but better than nothing if like me, your Arabic isn’t up to snuff.) I hope to write about his trip (kind of from his point of view, since he is not a writer) soon. It was fascinating even from my perspective as a bystander.

Nik’s Al Jazeera Article (Arabic)

Nik’s Al Jazeera Article (Google Translate URL)

Here is to a nice and slow, uneventful next few weeks!